Blake playing bowling

Blake went bowling in the holidays with me. He thought he was pretty good. But mummy was better. HaHaHa. I beat him. I won both games. He did come pretty close though but he did have bumper bowling.

Blake And Skyla

Blake and Skyla's last video together


Skyla's last bath that i had recorded

Autopsy Results/ Prayers Needed

Today i rang Skyla's pediatrician to see if her autopsy results wre in. He told us the main reason she passed away was from a Severe Pulmonary Hypertension episode which then caused her to go into Acute Heart Failure. He said her Lungs were small but not small enough that they were incompatible with life. Her Lungs showed patches of infections but not from a new infection. They were still healing from her older infections. It showed that she didn't have severe reflux. Her Kidneys were fine but her Liver was very swollen but that would have been caused by her Cardiac Arrest because all her blood was rushing to try and save her brain and heart. We wont get the final report until September i don't think. It will go into alot more detail and we will be having a meeting at the hospital so they will go through everything with us then.
Today i made an appointment to go and see a councillor, don't know how it will go but i guess it couldn't hurt. Last night i really lost it. I was in bed watching TV and i just started bawling my eyes out. I must of cried myself to sleep because next thing i knew it was morning. I wish i could dream about her. Instead i re-live the day over and over and over. The worst day of my life. Friday 13th June 2008.

Prayers need for my friends baby ZAC. He is in ICU where Skyla was. He is a very sick little boy at the moment. He has Wiskott Aldrich Syndrome. He has a blood and a immunity disorder. Today he is meant to be having Heart surgery. Please send some prayers his way. His blog is http://zacruglesswas.blogspot.com

My First Entry

I created this blog about 1 and 1/2wks ago. I have started to write my first entry many a times but couldn't bring myself to post it. I don't even know what to write. I should be writing in Skyla's blog and letting everyone know about her and what she has been doing and how well she is going, but she isn't here with us anymore. Its not fair. I just want her back. I shouldn't have to write about my life after Skyla. The last few weeks has been very hard since loosing our precious baby girl. We miss her so much. Not much has been happening in the last few weeks. All i do is sit on the computer and look at pictures and videos of my little girl. I cry everyday. Its just so hard. I think im obsessed with her blog and other CDH babies blogs. I get so upset seeing other CDH babies blogs that aren't doing so well and then hearing about baby Seth and Daniel passing away. It broke my heart knowing other parents are going through what we went through. On the other hand it is great to see other babies that are doing so well. It makes me smile.
Not much else has been happened over the last few weeks. Joe started a new job last week. He is doing night shift at the moment. Blake is back at school since the holidays are now over. He is playing rugby league on Saturdays and he trains every Tuesdays and Thursdays. He only has a few more weeks left i think. His team is doing really well. His team was lucky enough to get selected to play before the final State Of Origin Rugby League game at Telstra Stadium at Homebush. He did pretty good. They also got to be Guard of Honour before the game. Blake and all his team mates wore black arm bands in memory of his beautiful little sister. She would have been so proud of him. We were so proud of him.
We are still waiting on Skyla's autopsy results, hopefully i will find out today. The Dr is hopefully gonna call and let us know but we will also be going back in to the hospital so that they can go through everything with us. Its gonna be hard going back there but its something that we have to do. I will update that once we know what really happened and if the found anything else. Thankyou again for everyones love and support throughout Skyla's journey, it has meant so much to us all.

Kristy, Joe and Blake xoxo